If you have HCU, keeping your Hcy levels as close to normal as is possible is the best way to maximise your health potential. There are different management for HCU, depending on how severe your disease is and the age you were diagnosed, but most people with HCU manage their condition with a low protein diet which may include a special nutritional supplement.
Keeping Hcy levels in range is very important throughout childhood, because too much Hcy can cause permanent problems in the way your eyes, brain, skeleton and vascular system (including your heart, veins and arteries) develop.
But if you’re managing your HCU with a low protein diet, it’s important to stick with it through life. High Hcy levels can cause serious problems at any age, and you may not be able to reverse these by going back on diet. Adults and teenagers with high Hcy levels can develop eye problems like short sightedness, glaucoma or dislocation of their lens, and osteoporosis, particularly in the spine. They may develop serious problems with the brain and nervous system, like intellectual disability, seizures, and problems controlling body movements, as well as psychological problems like depression, anxiety, personality problems, OCD and psychosis. Blood clots are common in people with poorly controlled HCU, and can cause potentially fatal problems like deep vein thrombosis, pulmonary embolism or stroke.
Many of these symptoms are very serious and can have a huge effect on the way you live. Staying on diet helps you to stay healthy and live your best life.